Trustworthy Medical Information 

Last update 25th October 2018 BR


Surviving Melanoma in Europe.  

Access to prevention, early detection and effective treatment for all.

Melanoma Patient Network Europe


MPNE position


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Trustworthy Medical Information is critical for Melanoma patients as survival continues to depend on it. This applies both to written and spoken information.


MPNE standards for high-quality Medical Information

 


Accurate-

evidence-, not eminence-based Medicine. With date and reference please.

Medical Information for patient needs to be accurate. As therapeutic progress can be fast, medical information needs to bedated and reviewed regularly. Outdated information is no longer accurate!

Medical Information for patients needs to be traceably evidence-based and that means referenced with the original publications. 


 Example 

NO      'Written by Doctor WHO'

YES     'Based on Study Y, published in NEJM in 2018 (FULL REFERENCE)'  1st October 2018 




Accessible

If you can't put it simply, you don't understand it well enough

Medical Information for patients has to be written in an accessible way

that makes medical technical terms understandable without

'dumbing down' or leaving out critical information.


Explaining difficult concept in an accessible way is difficult and should be 

part of the teaching for Health Care Professionals.




Empowering

Google is as good as you know what to search for

Medical Information needs to enable patients to continue to educate themselves and to take action. Over-simplification or incomplete information (e.g. not telling a patient which stage he or she is) prevents a patient from looking and actually finding further correct information and greatly increases the risk of patients falling for 'fake news'.












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​​Further reading


https://www.healthnewsreview.org/2018/10/its-time-for-aaas-and-eurekalert-to-crack-down-on-misinformation-in-pr-news-releases/