Surviving Melanoma in Europe.  

Access to prevention, early detection and effective treatment for all.

Melanoma Patient Network Europe


in  Central and Eastern EuropE

30th August- 1st September 2019

Skopje, Macedonia


Version 5th July 2019


30th August- 1st September 2019


Park Hotel, 1732 street no.4, Skopje 1000, Macedonia

please bring your own tablet/ laptop


13.00- 14.00 
Check-in and Registration

14.00- 15.00
Purpose of the meeting and elevator-introduction! present yourself in 2 min

Elevator introduction explained
Patient advocacy is not a usual field of work, so most people we meet will have never heard about it. Often, we meet people in passing- so the art is to present the essential of who we are and what we do in the time it takes to share an elevator with someone.
Out of this our elevator-introductions! were born- we set a timer and everyone gets exactly 2 min to present her- or himself. Please prepare- and practice makes perfect!


15.00- 15.30
Session 1 – Knowledge protects

Understanding current Melanoma therapies

Melanoma therapies have changed a lot since 2011- but not every patient understands that they aren't chemotherapy and that side effects are different
Know your Stage!
Why staging matters and how to best teach our patients
Bettina Ryll, Gilliosa Spurrier and Violeta Astratinei

15.30- 16.00 Coffee

16.00- 17.30
Session 2- Melanoma therapies- what’s coming next and clinical trials in CEE

What are upcoming developments in Melanoma, the importance of clinical trials for Melanoma patients and what can we as network do?
Recap: how to find clinical trials

17.30- 19.00
Session 3- Group work Access mapping part 1
We will map the availability of Melanoma therapies in Central and Eastern Europe

19.30 Advocacy projects- submit an abstract with your application!

20.00 Dinner
Continue the discussion with your team over dinner


8.00- 9.00 Breakfast

Session 4- The role of HTA in providing universal healthcare coverage 

10.30-11.00 Coffee

11.00 – 12.30

Session 5- Groupwork part 2

13.00 – 14.00 Lunch

14.30 – 15.00 Advocacy projects- submit an abstract with your application!

15.00- 16.00 Groupwork part 3

16.00 -16.30 Coffee


Session 7- Groupwork: finishing your country report

18.00- 19.30 Present your results and Reception

19.30 Conference dinner

Sunday, 26th November 2017

Advocates only- planning for MPNCEE2020

 8.00- 9.00 Breakfast

Please make sure you check out

9.00- 10.30- Advocacy in CEE: we will discuss the topics you submit

10.30- 11.00 Coffee

11.00- 12.30
Planning for MPNCEE 2020

12.30- 12.45
Workshop Summary and Closure
Bettina Ryll, MPNE

13.00- 14.00 Lunch and Departure

Looking forward to seeing you all in Skopje!

The MPNE team


MPNCEEhubs 2019