Surviving Melanoma in Europe.
Access to prevention, early detection and effective treatment for all.
Melanoma Patient Network Europe
MPNE WORKSHOP 22nd- 24th November 2019
The small print
Decisions about workshop participation will be based on suitability for the workshop as well as scope of the Melanoma patient network Europe and are final.
We thank for their support
Krusenberg Herrgård is a friendly conference center
and hotel at the lake Mälaren, a 25 min drive away from Stockholm Arlanda, Sweden's main airport.
Workshop participation, travel
and full-board accommodation
will be free for participants.
Participation is upon application only.
Last update 22nd February 2019 BR
22nd November- 24th November 2019
Krusenberg Herrgård, Uppsala, Sweden
Patient advocacy in Melanoma has been undergoing a rapid evolution and advocacy concepts are becoming increasingly sophisticated.
Since novel therapies now offer real hope of survival for patients even with advanced disease- unthinkable as little as 10 years ago- concerns in Melanoma advocacy have shifted to saving patients' lives and rather technical and scientific areas like setting research agendas, drug development, regulatory and HTA processes, pharmaco- economics and challenges around sustainability, affordability and ecosystems supporting innovation.
In these settings, just having a personal opinion is insufficient as other stakeholders will demand the evidence for your claims.
This workshop will focus on the concept of evidence-based advocacy, how to find and analyse scientific evidence or to generate it yourself and how to communicate it afterwards.
Now why this workshop?
While most of us are affected by advanced Melanoma, either as patients or as carers, we have realised that our personal stories, however powerful, are insufficient to drive change on their own.
see program and under development
For whom is this workshop?
This is a workshop for active experienced MPNEhubs and upon application only.
We are looking for European Melanoma advocates
1. who are active in Melanoma advocacy within their own country and/ or at European level and
2. who have demonstrated interest in the wider Melanoma/ advocacy community outside their own narrow field of work.
We are looking for advocates who want to make a difference and for that are willing to learn, work together and put in the effort before, during and after the workshop to produce concrete results for the benefit of Melanoma patients.
The number of participants is limited to 30 advocates to ensure effective exchange.
A sufficient working knowledge of English is essential to participate in the discussion.
How does it work?
1. Attendance of this workshop is upon application only.
2. Selection: The organising committee will select participants based on their motivation with regards to access to innovative therapies in Melanoma, experience in collaboration and exchange and their level of English. As always, we are aiming for a balanced European mix!
3. Acceptance: Selected applicants will need to accept their place at the workshop and agree to
4. Accommodation: registration, accommodation and workshop meals will be arranged by MPNE and are free for selected advocates during the workshop (Friday and Saturday night).
5. Travel: Advocates however need to arrange their own travel- please wait until you have heard from us before booking. We are able to provide a travel allowance up to 400 Euro for economy/ 2nd class travel after the event and against original receipts only. Please book as soon as possible to keep travel costs low.
6. Extras: Please note that extras at the hotel, additional nights as well bank fees are at your own expenses and will not be covered by MPNE.
Gilliosa Spurrier, MPNE
Violeta Astratinei, MPNE
Bettina Ryll, MPNE
Fredrik Östman, MPNE