Version 21st January 2019
Preliminary program, subject to change
So far, we only have a few patients with mucosal and acral Melanoma in our network- but if there is sufficient interest, we are happy to add full parallel tracts for this, too! Just drop us a line and get involved, we are looking forward to hearing from you!
Friday 25th October
13:00 – 14:00 Registration and meet your colleagues over a cup of coffee
14:00 – 14:30 MPNErare opening session
Welcome to the 2nd edition of MPNErare! Who are we as Melanoma Patient Network Europe and how do we work? Why do we need a special conference for rare Melanomas?
14.30 – 16.00 Session 1 Introduction to rare Melanomas
1.1 Black swans — the challenges of helping patients with rare Melanomas and the power of a network
Gilly Spurrier and Violeta Astratinei, MPNE
Rare Melanomas in a nutshell
What anyone should know about the rare Melanomas
1.2 Ocular Melanoma
1.3 Paediatric Melanoma
1.4 Familial Melanoma
1.5 Mucosal Melanoma
1.6 Acral Melanoma
16.00 – 16.30 Coffee break
parallel sessions start- tbc and depending on facilities
16.30 – 18.00 Session 2 Educational Sessions
2.1 Ocular Melanoma
Diagnosis, screening and treatment of the primary tumour
2.2 Paediatric Melanoma
Diagnosis, sub-types and pre-disposing conditions
2.3 Mucosal Melanoma
2.4 Acral Melanoma
2.1 Lean advocacy- what advocates can learn from lean start-up thinking
A condensed version of the concepts that we started elaborating in our Krusenberg 2017 workshop!
Andrew Evans, MPNE
19.00– 20.00 World Café Reception- meet old friends, make new ones and brainstorm together about solutions to all things rare!
20.00 Welcome Dinner
Saturday 26th October
09:00 – 10:30 Plenary Session on Ocular Melanoma
Sophie Pipernau- Neuman, IGR, Paris, confirmed
Immune therapy in Uveal Melanoma
Richard Carvajal, Columbia University, NY, confirmed
10:30 – 11:00 Coffee break
11:00 – 12:30 Plenary Session: Familial and paediatric Melanoma.
12:30 – 14:00 Lunch
14.00 – 15.30 Plenary Session: Mucosal Melanoma
15.30 – 16.00 Coffee
16.00- 17.30 Plenary Session: Acral Melanoma
19.00– 20.00 Reception and poster competition
20.00 Conference Dinner
Sunday 27th October
Introduction to MPNE as a network- how do we work together? What is an effective network? How do we inform and educate patients? Get inspired by examples of successful advocacy!
09:00 – 10:00 Session 8 Update from the network
Updates from MPNE's projects in rare Melanomas and our 2 Horizon2020 projects
8.1 How does MPNE work?
10:30 – 11:00 Coffee break
11:00 – 12:00 Session 9- Advocacy in Action
12.00- 12.30 Conference Summary and Closure
13:00 Lunch & Departure
Looking forward to seeing you all in Berlin!
The MPNE organisers
25th- 27th October 2019
with rare Melanomas
Surviving Melanoma in Europe.
Access to prevention, early detection and effective treatment for all.
Melanoma Patient Network Europe