25th- 27th October 2019
Melanoma Patient Network Europe
Surviving Melanoma in Europe.
Access to prevention, early detection and effective treatment for all.
with rare Melanomas
Version 21st January 2019
Preliminary program, subject to change
So far, we only have a few patients with mucosal and acral Melanoma in our network- but if there is sufficient interest, we are happy to add full parallel tracts for this, too! Just drop us a line and get involved, we are looking forward to hearing from you!
Friday 25th October
13:00 – 14:00 Registration and meet your colleagues over a cup of coffee
14:00 – 14:30 MPNErare opening session
Welcome to the 2nd edition of MPNErare! Who are we as Melanoma Patient Network Europe and how do we work? Why do we need a special conference for rare Melanomas?
14.30 – 16.00 Session 1 Introduction to rare Melanomas
1.1 Black swans — the challenges of helping patients with rare Melanomas and the power of a network
Gilly Spurrier and Violeta Astratinei, MPNE
Rare Melanomas in a nutshell
What anyone should know about the rare Melanomas
1.2 Ocular Melanoma
1.3 Paediatric Melanoma
1.4 Familial Melanoma
1.5 Mucosal Melanoma
1.6 Acral Melanoma
16.00 – 16.30 Coffee break
parallel sessions start- tbc and depending on facilities
16.30 – 18.00 Session 2 Educational Sessions
2.1 Ocular Melanoma
Diagnosis, screening and treatment of the primary tumour
2.2 Paediatric Melanoma
Diagnosis, sub-types and pre-disposing conditions
2.3 Mucosal Melanoma
2.4 Acral Melanoma
2.1 Lean advocacy- what advocates can learn from lean start-up thinking
A condensed version of the concepts that we started elaborating in our Krusenberg 2017 workshop!
Andrew Evans, MPNE
19.00– 20.00 World Café Reception- meet old friends, make new ones and brainstorm together about solutions to all things rare!
20.00 Welcome Dinner
Saturday 26th October
09:00 – 10:30 Plenary Session on Ocular Melanoma
Sophie Pipernau- Neuman, IGR, Paris, confirmed
Immune therapy in Uveal Melanoma
Richard Carvajal, Columbia University, NY, confirmed
10:30 – 11:00 Coffee break
11:00 – 12:30 Plenary Session: Familial and paediatric Melanoma.
12:30 – 14:00 Lunch
14.00 – 15.30 Plenary Session: Mucosal Melanoma
15.30 – 16.00 Coffee
16.00- 17.30 Plenary Session: Acral Melanoma
19.00– 20.00 Reception and poster competition
20.00 Conference Dinner
Sunday 27th October
Introduction to MPNE as a network- how do we work together? What is an effective network? How do we inform and educate patients? Get inspired by examples of successful advocacy!
09:00 – 10:00 Session 8 Update from the network
Updates from MPNE's projects in rare Melanomas and our 2 Horizon2020 projects
8.1 How does MPNE work?
10:30 – 11:00 Coffee break
11:00 – 12:00 Session 9- Advocacy in Action
12.00- 12.30 Conference Summary and Closure
13:00 Lunch & Departure
Looking forward to seeing you all in Berlin!
The MPNE organisers