25th- 27th October 2019


Melanoma Patient Network Europe

Surviving Melanoma in Europe.  

Access to prevention, early detection and effective treatment for all.


Improving care

for patients

with rare Melanomas 

in Europe.


Version 21st January 2019

Preliminary program, subject to change

So far, we only have a few patients with mucosal and acral Melanoma in our network- but if there is sufficient interest, we are happy to add full parallel tracts for this, too! Just drop us a line and get involved, we are looking forward to hearing from you! 

Friday 25th October

13:00 – 14:00    Registration and meet your colleagues over a cup of coffee

14:00 – 14:30    MPNErare opening session

Welcome to the 2nd edition of MPNErare! Who are we as Melanoma Patient Network Europe and how do we work? Why do we need a special conference for rare Melanomas?

14.30 – 16.00   Session 1 Introduction to rare Melanomas

1.1 Black swans — the challenges of helping patients with rare Melanomas and the power of a network
Gilly Spurrier and Violeta Astratinei, MPNE

Rare Melanomas in a nutshell

What anyone should know about the rare Melanomas

1.2 Ocular Melanoma
1.3 Paediatric Melanoma

1.4 Familial Melanoma

1.5 Mucosal Melanoma

1.6 Acral Melanoma

16.00 – 16.30    Coffee break

parallel sessions start- tbc and depending on facilities

16.30 – 18.00    Session 2  Educational Sessions

2.1 Ocular Melanoma

Diagnosis, screening and treatment of the primary tumour

2.2 Paediatric Melanoma

Diagnosis, sub-types and pre-disposing conditions

upon request

2.3 Mucosal Melanoma

2.4 Acral Melanoma 

2.1 Lean advocacy- what advocates can learn from lean start-up thinking

A condensed version of the concepts that we started elaborating in our Krusenberg 2017 workshop!

Andrew Evans, MPNE

19.00– 20.00   World Café Reception- meet old friends, make new ones and brainstorm together about solutions to all things rare!

20.00        Welcome Dinner 

Saturday 26th October

09:00 – 10:30    Plenary Session on Ocular Melanoma  

​Sophie Pipernau- Neuman, IGR, Paris, confirmed

Immune therapy in Uveal Melanoma 
Richard Carvajal, Columbia University, NY, confirmed

10:30 – 11:00    Coffee break

11:00 – 12:30    Plenary Session: Familial and paediatric Melanoma.

12:30 – 14:00    Lunch

14.00 – 15.30   Plenary  Session: Mucosal Melanoma

15.30 – 16.00    Coffee

16.00- 17.30  Plenary Session: Acral Melanoma 


19.00– 20.00    Reception and poster competition 

20.00     Conference Dinner 

Sunday 27th October
Advocacy Sunday

Introduction to MPNE as a network- how do we work together? What is an effective network? How do we inform and educate patients? Get inspired by examples of successful advocacy!

09:00 – 10:00   Session 8 Update from the network

Updates from MPNE's projects in rare Melanomas and our 2 Horizon2020 projects 

8.1 How does MPNE work?

8.2 UMCURE2020

8.3 Share4Rare

10:30 – 11:00    Coffee break

11:00 – 12:00  Session 9- Advocacy in Action

12.00- 12.30 Conference Summary and Closure

13:00 Lunch & Departure

Looking forward to seeing you all in Berlin!

The MPNE organisers