Version 21st January 2019

Preliminary program, subject to change

So far, we only have a few patients with mucosal and acral Melanoma in our network- but if there is sufficient interest, we are happy to add full parallel tracts for this, too! Just drop us a line and get involved, we are looking forward to hearing from you! 

Friday 25th October

13:00 – 14:00    Registration and meet your colleagues over a cup of coffee

14:00 – 14:30    MPNErare opening session

Welcome to the 2nd edition of MPNErare! Who are we as Melanoma Patient Network Europe and how do we work? Why do we need a special conference for rare Melanomas?

14.30 – 16.00   Session 1 Introduction to rare Melanomas

1.1 Black swans — the challenges of helping patients with rare Melanomas and the power of a network
Gilly Spurrier and Violeta Astratinei, MPNE

Rare Melanomas in a nutshell

What anyone should know about the rare Melanomas

1.2 Ocular Melanoma
1.3 Paediatric Melanoma

1.4 Familial Melanoma

1.5 Mucosal Melanoma

1.6 Acral Melanoma

16.00 – 16.30    Coffee break

parallel sessions start- tbc and depending on facilities

16.30 – 18.00    Session 2  Educational Sessions

2.1 Ocular Melanoma

Diagnosis, screening and treatment of the primary tumour

2.2 Paediatric Melanoma

Diagnosis, sub-types and pre-disposing conditions

upon request

2.3 Mucosal Melanoma

2.4 Acral Melanoma 

2.1 Lean advocacy- what advocates can learn from lean start-up thinking

A condensed version of the concepts that we started elaborating in our Krusenberg 2017 workshop!

Andrew Evans, MPNE

19.00– 20.00   World Café Reception- meet old friends, make new ones and brainstorm together about solutions to all things rare!

20.00        Welcome Dinner 

Saturday 26th October

09:00 – 10:30    Plenary Session on Ocular Melanoma  

​Sophie Pipernau- Neuman, IGR, Paris, confirmed

Immune therapy in Uveal Melanoma 
Richard Carvajal, Columbia University, NY, confirmed

10:30 – 11:00    Coffee break

11:00 – 12:30    Plenary Session: Familial and paediatric Melanoma.

12:30 – 14:00    Lunch

14.00 – 15.30   Plenary  Session: Mucosal Melanoma

15.30 – 16.00    Coffee

16.00- 17.30  Plenary Session: Acral Melanoma 


19.00– 20.00    Reception and poster competition 

20.00     Conference Dinner 

Sunday 27th October
Advocacy Sunday

Introduction to MPNE as a network- how do we work together? What is an effective network? How do we inform and educate patients? Get inspired by examples of successful advocacy!

09:00 – 10:00   Session 8 Update from the network

Updates from MPNE's projects in rare Melanomas and our 2 Horizon2020 projects 

8.1 How does MPNE work?

8.2 UMCURE2020

8.3 Share4Rare

10:30 – 11:00    Coffee break

11:00 – 12:00  Session 9- Advocacy in Action

12.00- 12.30 Conference Summary and Closure

13:00 Lunch & Departure

Looking forward to seeing you all in Berlin!

The MPNE organisers 



25th- 27th October 2019


Improving care

for patients

with rare Melanomas 

in Europe.

Surviving Melanoma in Europe.  

Access to prevention, early detection and effective treatment for all.

Melanoma Patient Network Europe