11th- 13th October 2019
Skeppet Ärans Väg 23, Nya Varvet, 426 71 Västra Frölunda
Friday, 11th October
Nordics hubs meeting tbc
13.30- 15.00 QuickStart by your national Melanoma organisation
Introduction to the weekend in your own language
15.00- 16.00 Coffee and registration
16.00- 17.00 We in the Nordics opening session
Welcome to Gothenburg and motivation for the first Nordic Melanoma patient conference
MPNE nordics steering committee
Introduction to Melanoma
Know your Stage!
17.00- 18.30 The latest from ESMO
Update about the latest developments in Melanoma- what does this mean for patients with Stage 4,3 or 2 Melanoma? Special focus on adjuvant treatments and novel combinations.
19.00 Welcome reception with a twist and Dinner
Saturday, 12th October
9.00- 10.00 Session 1: Immune therapies
How do Immune therapies actually work?
Response to immunotherapy- what influences response? What do we know about the role of the microbiome, nutrition, body weight? And who responds? Why are biomarkers so important?
Managing immune therapy side effects
10.00-10.30 Session 2: Focus session: adjuvant versus neo-adjuvant treatment
10.30- 11.00 Coffee
11.00- 12.00 Session 3: Challenges in Melanoma
When therapies fail- a patient perspective
Kristian Øye, Norway
Marrius Normann, Norway tbc
Resistance to PD1
Special challenge: Brain mets
12.00- 12.30 Session 4: Melanoma and genes
11.00- 12.30 Parallel session: ocular Melanoma
12.40- 13.50 Lunch
14.00- 14.30 Melanoma & Men- short session
Why do men with Melanoma seem to do worse?
Working groups: country-specific
14.30- 14.45 Introduction
14.45- 15.30 Country-specific Group activity: how do new medicines reach patients in YOUR country? Prepare a
Parallel session: ocular Melanoma in the Nordics
15.30- 16.00 Coffee and CAKE 🍰
16.00- 17.30 Access to new therapies in the Nordics- HTA, FINOSE
Accessing treatment abroad
Erik Näsman tbc
Access to clinical trials abroad- the Danish example
An introduction to Health Technology Assessment and the nordic collaboration
Niklas Hedberg tbc
EUPATI- learning about drug development
Anders Olauson, former EPF president, tbc
Mirjami Tran Minh, Kari Anne Fevang
17.30- 18.30 Exhibit your group work and win a prize
Prize for the best exhibit
Kari Anne Fevang
Sunday, 13th October
patient advocacy day- patient advocates only
9.00 - 10.30 Knowledge protects.
‘Fake news’ are a real danger for Melanoma patients- but finding correct information isn’t always easy. This session will explain the difference between real science and pseudoscience and how to check whether medical information is valid. And end with an MPNE tradition- a training on how to read scientific literature in the original!
How to read a scientific article 15’
- Why should I read scientific literature in the original?
- The MPNE cheat sheet to scientific literature
Group activity- read a Melanoma study
10.30- 11.00 Coffee
11.00 - 12.30 Making a difference for Melanoma patients
Panel discussion: looking at our challenges, what can we as network do?
12.30- 12.45 next steps and conference closure
13.00- 14.00 Lunch and departure
We are looking forward to seeing you in October!
Last update 26th June 2019 BR
Surviving Melanoma in Europe.
Access to prevention, early detection and effective treatment for all.
Melanoma Patient Network Europe