for European Melanoma patient advocates
27- 29th November 2015
Krusenberg Herrgård, Uppsala, Sweden
Why this workshop?
In the last few years, Melanoma therapies have been evolving very fast and the access to accurate and timely information about the latest developments has become a major challenge for Melanoma patients and advocates alike. At MPNE2015, the last conference of our network, MPNEcore advocates accordingly identified the reading of original scientific literature as their biggest challenge- that we address with this workshop.
MPNE's aim is to help Melanoma advocates acquire the necessary knowledge to find, understand and efficiently share relevant Melanoma news as fast as possible and across language barriers.
Who should apply?
European Melanoma advocates who want to learn how to read the scientific publication of a clinical study in Melanoma and who want to contribute that all European Melanoma patients have access accurate and timely information about the latest developments in Melanoma.
The number of participants is limited to 20 advocates to have room for participation and discussion and a good enough working knowledge in English is essential! Applicants will be selected based on motivation, experience in collaboration and exchange and their level of English and as always, we are aiming for a balanced European mix.
as well as accommodation and meals will be free for selected advocates. We are also able to provide a travel allowance up to 400 Euro after the event against original receipts only.
Friday, 27th November 2015
Visit to the Uppsala Monitoring Center
Introduction to the joint UMC/ MPNE project
Transfer from Uppsala to Krusenberg Herrgård
Welcome at Krusenberg Herrgård
Introduction to the workshop
MPNE activities in 2015 and 2016
Bettina Ryll, Gilliosa Spurrier
How do PAs access scientific literature?
Open access and tools available to PAs.
Dinner at Krusenberg Herrgård
Saturday, 28th November
Workshop Day 1
How to read a scientific publication in Melanoma?
Faculty: John Haanen, NKI Amsterdam, Netherlands
We will systematically go through a scientific publication and explain the structure, the figures and the analysis of a scientific publication.
Detailed program for Saturday to follow.
Cut the jargon.
Writing summaries people actually read and understand.
Join us for Julbord, the traditional Swedish Christmas Dinner
Sunday, 29th November
Workshop Day 2
How to make scientific information accessible for our patients?
Social media strategy
How to use social media to systematically reach more patients.
How do we reach more Melanoma patients in Europe?
Lunch and Departure
John Haanen, NKI, Amsterdam, NL
Kristin Bryon, MPNE
Gilliosa Spurrier, Mélanome France and MPNE
Alfonso Auguarón, Myeloma Patients Europe
Roald Nystad, FØFLEKKREFTFORENINGEN and MPNE
Violeta Astratinei, Stichting Melanoom, Melanoma Romania and MPNE
Bettina Ryll, MPNE
MPNE NOvember workshop
Surviving Melanoma in Europe.
Access to prevention, early detection and effective treatment for all.
Melanoma Patient Network Europe
The small print
Decisions about workshop participation will be based on suitability for the workshop as well as scope of the Melanoma patient network Europe and are final.
Workshop participation, travel
and full-board accommodation
will be free for participants
Krusenberg Herrgård is a friendly conference center
and hotel at the lake Mälaren, a 25 min drive away from Stockholm Arlanda, Sweden's main airport.