MPNEsupport Org 802492-1069, Sweden
Melanoma Patient Network Europe
Last update 1st February 2021
MPNErare 2021The challenge of being rare.
Melanoma is a cancer originating from melanocytes, the body’s pigment producing cells, and is mostly found on the skin. However, on rare occasions, Melanoma can also occur in the eye (Ocular/Uveal Melanoma — approximately 4000 new cases across Europe each year), the inner surfaces of the body (Mucosal Melanoma — 1000/ yr), on hand and feet (Acral Melanoma — 5000/ yr) and in children (Pediatric Melanoma — 1000/ yr).
Patients with Rare Melanomas face unique challenges: Rare conditions are often diagnosed late or incorrectly, with limited access to specialists and centres of excellence. Genetically and clinically distinct from adult cutaneous (skin) Melanoma, existing treatments are either less efficient or have not been systematically tested in Rare Melanomas. Small patient populations mean slow recruitment for clinical trials and the general scarcity of clinical data is causing restrictions in access to potentially effective treatments in many countries today. This leaves patients with rare forms of Melanoma with few options, in particular in the metastatic setting.
MPNErare 2021 online
conference language is English
Who should register?
Melanoma patients, carers and advocates, in particular with rare forms of Melanoma or with a special interest in rare Melanomas.
Please note that attendance requires registration.
Not a Melanoma advocate but still interested to attend? Please contact us
What does it cost?
Participation is free.
We are looking forward to seeing you online!
Bettina, Fredrik, Gilliosa and Violeta